Zahra, 21, and Sana, 14, are two sisters with an unknown disease that even has not been named by physicians. Both sisters suffer from mental and motor complications as well as Alpecia. When I ask their mom about her dream, she just silently cries.1/10
Alireza, 17, suffers from EB (Epidermolysis bullosa), a group of inherited connective tissue diseases that cause blisters in the skin and mucosal membrane. Alireza was not taken care of properly and has tolerated a lot of pain. He had to leave school for the improper conditions but he has been using standard bandages. His only fun is taking photos with a cellphone. He wishes to do well and all tenants can have their own house.2/10
Benyamin, 3, suffers from Spinal muscular atrophy (SMA)SMA, a rare neuromuscular disorder characterized by loss of motor neurons and progressive muscle wasting. It is a genetic disease, affecting the part of the nervous system that controls voluntary muscle movement. Benyamin was 20 days when doctors realized that he had SMA. He had respiratory arrest when he was less than two months old and he was under the respiratory system since then. The only hope of his mother was to send him overseas for treatment which had a huge cost—actually more than 3 billion Tomans. He passed away.3/10
Zeinab, 8, suffers from EB (Epidermolysis bullosa), a group of inherited connective tissue diseases that cause blisters in the skin and mucosal membrane. As one of her feet did not grow normally, Zeinab could not walk until she was 4 and then, this was like a miracle. Zeinab is very energetic and smart and her parents passion and consistency has been spiritually effective. Zeinab has recently had problem with her cornea as a result of drug side effects. However, this new hardship might affect her future as Zeinab wishes to become an ophthalmologist.4/10
Maryam,30, suffers from Ichthyosis, a genetic disorder (acute, special type of skin dryness). Maryam says that the disease has not hindered her from pursuing her dreams. For example, she has a great voice and wishes to become a singer. She also likes to teach to the handicapped and teach them about her art.5/10
Hossein , 11, suffers from Ichthyosis, a genetic disorder (acute, special type of skin dryness). Hossein and his family moved from Azna (Lorestan Province) to Tehran following the despair of the local physicians to treat this rare disease. He is in the 4th grade of elementary school. Hossein dreams of buying a house and a car for his mom and wishes that his eyes get well soon so that he can go to school by bike. 6/10
Somayeh, 32, suffers from the autoimmune disease of Alopecia (loss of head and body hair). Her memories of the village he used to reside are unforgettably painful. All members of the family have the same disease. Somayeh married a healthy man 10 years ago and has a 2-year-old son who also suffers from Alopecia. Somayeh believes that her husband is her savior/angel.7/10
Esmaeil,50, has Cavernous hemangioma (dilation of blood vessels). His condition has aggrevated in the recent two years and sometimes his tongue swells when sleeping due to the rush of blood to the tongue and lips and it does not fit in his mouth. However, he believes that life goes on and only remembrance of God brings peace to his heart. Four months after the photo was published, he passed away instep due to asphyxia caused by the illness.8/10
Amir Mohammad, 15, suffers from mucopolysaccharidosis or MPS (a metabolic disorder through which lysosomal enzymes shortage causes disorders in the development of bone and connective tissue). His mom accompanied him at school in the first six years and then after, his friends help Amir Mohammad to go to school. He wishes to get his drivers license to ride a car and become a pharmacist so that he can formulate drugs to cure his disease.9/10
Rana had five children and two of them passed away due to Gaucher's disease (activity defect or deficiency of Beta enzyme-glucocerebroside causing enlargement of some organs like liver, spleen and brain). Four months ago, her eldest daughter, Sahar, passed away at 30 and she lost her 7-year-old son because she could not afford their heavy medical costs. Rana goes to Behesht Zahra (the local cemetery) to visit her children's tomb every day.10/10
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